Liens
- Be-TSC: www.betsc.be
- Centre des Maladies Rares UZ Brussel
- Facebook be-TSC (nl)
- Stichting Tubereuze Sclerose Nederland: www.stsn.nl (nl)
- Tuberous Sclerosis International: www.tscinternational.org
- TS Alliance (USA): www.tsalliance.org
- TS Association (UK): www.tuberous-sclerosis.org
- Association Sclérose Tubéreuse de Bourneville (France): astb.asso.fr